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My Story in Brief

Living with Dercum’s disease—marked by agonizing fatty tumors (50+ lipomas, 1–4 cm)—left me reliant on painkillers and surgeries. A stress-triggered flare-up added 50 new lipomas. Desperate, I tried "superfoods" but worsened symptoms due to hidden gluten. Eliminating gluten reduced pain in 3 days, but itching persisted. Cutting pesticides (via organic foods) and managing stress (lowering cortisol) finally calmed inflammation. Supplements (PEA, L-tryptophan) and emotional resilience practices (awarness, calming, gratitude) brought lasting relief. While about half of the lipomas required removal, balance was restored.
 

Key Triggers to Avoid

1. Gluten: Linked to gut inflammation and autoimmune-like reactions.

2. Glyphosate: Found in non-organic foods; disrupts gut health and metabolism.

3. Chronic Stress: Elevates cortisol, worsening inflammation and fat storage.

4. Alcohol: Strains the liver and disrupts gut balance.
    

Actionable Dercums Disease Healing Protocol

1. Diet:

   • Strictly gluten-free, organic (avoid pesticides).

   • Anti-inflammatory focus: Vegetables, lean proteins, omega-3s.

2. Supplements:

   • PEA (400 mg 2x/day): Reduces nerve pain and inflammation.

   • L-Tryptophan (500–1000 mg nightly): Improves sleep and mood.

3. Stress Management:

   • Practice mindfulness, gratitude, and emotional calm.

   • Avoid reactive behaviors (anger/fear); prioritize nervous system balance.

4. Medical Support:

   • Surgical removal of large lipomas after inflammation is controlled.

   • Explore DPP-4 inhibitors.
      

Why Dercum’s Is Challenging

• No cure; diagnosis excludes other conditions (e.g., fibromyalgia).

• Symptoms overlap with metabolic, autoimmune, and nerve disorders.

• Limited research due to rarity.
   

Emerging Treatments (2025)​

• Fat-targeting: Deoxycholic acid
   

Holistic Management

1. Eliminate Triggers: Gluten, alcohol, pesticides, stress, plant based oils.

2. Repair Systems:

   • Gut healing (probiotics, bone broth, L-Reuteri fermented milk or cocos milk).

   • Reduce inflammation (PEA, Curcumin, Sweet potato, Grass fed butter and meat).

3. Track Progress: Journal symptoms, diet, and stressors.
    

Hope & Takeaways

• Triggers matter: Avoid gluten, glyphosate, alcohol, and stress.

• Healing is holistic: Combine diet, supplements, and emotional resilience.

• Advocate for yourself: Share your story, join patient communities, and push for research.
   

You are not powerless—relief is possible.